How can we scientifically, accurately and efficiently collect data at birth? Developmental disability is increasing. Each year 75 to 120 billion dollars is transferred to the future debt because our generation refuses to collect the data and pass it to the next generation. (1) (2)
How can we mandate that research and to remove duplicated research services?
In addition, the history of science is filled with instances of steadfast practices, later proven to be harmful. Pregnancy medications and obstetric practices are full of instances where doctors and pharmaceutical companies thought that a medication or procedure was safe, only to find out that they were creating great harm.
This is a call for better measures and greater coordination of data and data sources across agencies and levels of government to strengthen existing data systems in the U.S. Standard Certificate of Live Birth to advance understanding of the causes of childhood disabilities and guide the formulation of more strategic, responsive and effective policies, data collection, research, programs, and interventions for the prevention of Developmental Disabilities. (3)
Prevention of disability without first scientifically, accurately and efficiently collecting data will be impossible for this and unknown future children.
What other road blocks in collecting data for research do we face to find the causes of Developmental Disabilities so we might prevent disability?
If you have information about the prevention of disability, please comment or send us an e-mail.
NHU invites you to visit our Report on the Prevention of Disabilities which focuses on the prevention of Developmental Disabilities.
(1) “Economic Costs Associated with Mental Retardation, Cerebral Palsy, Hearing Loss, and Vision Impairment”,” CDC, January 30, 2004, <http://www.cdc.gov/mmwr/preview/mmwrhtml/mm5303a4.htm> (05 March 2015).
(2) “How Many of Our Children are Affected? Interfaith Children’s Movement, <http://icmma.org/FaithinActionProgram/HealthCare/ChildDisability/HowManyChildrenareAffected/tabid/115/Default.aspx> (05 March 2015). From the National Dissemination Center for Children with Disabilities, <http://www.nichcy.org/Disabilities/Specific/Pages/Default.aspx.>.
(3) Neal Halfon, Amy Houtrow, Kandyce Larson, and Paul W. Newacheck – summary, “The Changing Landscape of Disability in Childhood “– vol.22/No.1/Spring 2012 – <http://www.princeton.edu/futureofchildren/publications/docs/22_01_02.pdf> (14 January 2015).