Personal Reflections

This category contains 10 posts

A Story of Being Human: Love Life, and Love Living It

This is an installment from our storytelling photography project entitled A Story Of Being Human. To learn more, check out our introductory post here.   “When I was little I went to a kids MDA camp. There were two people there, Donna and Becky. They were both older than me and when I was a … Continue reading

A Story of Being Human: Doing It My Way

This is an installment from our storytelling photography project entitled A Story Of Being Human. To learn more, check out our introductory post here.   “I always did it my own way, whatever ‘it’ is. I’ve done a lot of things I really wanted to do, Packer games, I left the country—took a road trip … Continue reading

Gratitude, a first step towards happiness

Written by Scott U., Edited by Lori P. Being grateful may seem simple to some of us, but to others it can seem like a chore.  We might go an entire day, or week, or maybe even a month or more, focusing on all that’s “wrong” and forget to take stock of what’s “right.” The … Continue reading

Why Long-Term Care Programs Give Me My Arms, Legs, and So Much More.

It’s been a long night. I’ve been tossing and turning. My mouth is dry; I need more water. I haven’t gotten much sleep lately, so I know this morning is going to be rough. The door unlocks, the light turns on. I’m greeted by the start of a tea kettle for my French press coffee … Continue reading

From Secret Entrances to Plywood Ramps: Navigating Your Social Life With a Disability

Your twenties are supposed to be the time where you branch out, meet new people, and experience new things for the first time.  If you’re in college, “welcome week” brings about many activities, and every weekend there’s something going on.  If you are not in school, you and your friends are all trying to balance … Continue reading

How I Became a Boss (Like a Boss): Hiring My Own Personal Care Assistants

When I started self-hiring my own Personal Care Assistants (PCA’s) about two years ago, I really didn’t know what I was doing–I just knew I needed help. I have a form of Muscular Dystrophy called Spinal Muscular Atrophy (Type 2). I like to describe my disability as having “lazy muscles.” This means, I need help … Continue reading

A Life Lesson in Disability

Written by Sean Komorowski No matter the type of person, there are lessons that can be learned from them. People with disabilities are especially influential, as our hardships in life aren’t easily dismissed. We go through every day with determination and strength, by which many people are bowled over, or left secretly wondering if they … Continue reading

Positivity breeds positivity

Written by Scott (Disability Advocate), Edited by Lori (NHU Editor) Robert M. Hensel once said, “I choose not to place ‘DIS’, in my ability.”  Think about it!  If YOU refuse to put the “dis” in your ability, why would you let someone else do it for you?!  Don’t let others bring you down or choose … Continue reading

When outrage isn’t enough

Incomprehensible tragedy…it happens every so often and when it does happen we find ourselves huddled in front of our televisions absorbing every detail…Every beaming face that flashes across the screen to remind us just how fragile and fleeting life is.  Every emotion pouring out of those left behind: every bit of anger, confusion, and bewilderment. … Continue reading

My Brother the Olympian

A reflection written by a guest blogger. When my brother was born I was told that he would not be doing all the things that other children would do.  I watched him put forth a tremendous effort to take his first steps.  I watched him laboriously learn to write.  I watched him struggle and learn to … Continue reading