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There are two main reasons. First, the legislative process is slow, just as the framers of the Constitution intended. The framers believed that a slow-moving legislature would be less able to infringe on citizens' rights and liberties. So, not only is it not designed for quick action, it’s actually structured to slow things down so... Continue Reading →
Inspired by Humans of New York, A Story of Being Human began as a way to bring disabled voices and your lived experiences into the light. Every word we share are your words, because disabled voices matter. Change starts with connection and shared experiences. It is our hope that through your stories we can bring... Continue Reading →
Updated December 5, 2023 - This will be updated as we become aware of active legislation that will directly impact disabled Americans. If you are aware of disability-related legislation that is not listed here, please let us know. There are currently quite a few bills moving through the United States 118th Congress (2023-2024) for the... Continue Reading →
How would you like a nice cold glass of cancer? How about a cup of hormone disruptions or abnormal fetal developments? While Governor Evers and members of the Joint Finance Committee point fingers and disagree on how to enforce new EPA water regulations, Wisconsinites continue to drink water contaminated with PFAS. What are PFAS? Colloquially... Continue Reading →
Want to see those tips in action? A constituent received an e-mail (for which they were subscribed) from their U.S. Representative touting "I Support Lower Prices for Insulin," boldly across the top. The e-mail went on to give reasons why they voted against a recent bill that would have lowered insulin prices for Seniors and... Continue Reading →
My name is Lori. I'm the face behind A Story of Being Human. My passion for storytelling and advocacy goes back a few decades, when I started working for a grassroots disability advocacy organization, New Horizons Un-Limited. One of my favorite parts of that work was meeting people who had lived a life I knew... Continue Reading →
Usually Type 1 Diabetes presents earlier in life. I was 23 when I was diagnosed. A year out of college, newly married, a new homeowner. Diabetes was not on my agenda. It was surprising. I was feeling not entirely well, I was losing some weight, very thirsty. The symptoms were alarming enough to get me... Continue Reading →
Updated March 13, 2024: This bill will NOT move forward this session! Wisconsin's Senate did not schedule a vote on the problematic Patient's Representative bill (SB 1027/AB 1088), and it's session is now adjourned. With this adjournment, this bill, in it's current form, will not become law this session. We have no doubt that calls... Continue Reading →
We’ve been in this house for 40 years. You can’t tell now, but we’re gardeners. Everything around this whole house blooms. And we have a big vegetable garden, green beans and purple beans, cucumbers, eggplant. Now Steve does a lot of it. He had to take over for me. Steve does everything. He does everything... Continue Reading →
"Teagan is a fiery, opinionated, loyal, deeply sensitive, empathetic young lady. She is the hostess with the mostess who, after getting over some initial anxiety, loves a good party! Seeing Teagan become a "typical" teen in many ways has been fantastic to watch!! Angelman children don't require a lot of sleep. We went a decade... Continue Reading →
Henry is just another kid. Especially now, he’s almost 12. He wants so much to be independent. He sees his friends being able to go do things on their own or have a phone, and he’s like “what about me? “ He loves to play baseball. He plays with Miracle League. He likes soccerHe loves... Continue Reading →
New Horizons Un-Limited 